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Celebrating the 30th Anniversary of the Americans with Disabilities Act

"Human progress is neither automatic nor inevitable. Even a superficial look at history reveals that no social advance rolls in on the wheels inevitability. Every step towards the goal of justice requires sacrifice, suffering, and struggle; the tireless exertions and passionate concern of dedicated individuals."Dr. Martin Luther King OverviewIn 1792, George Washington wrote to Thomas …

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Colonial Williamsburg – Lessons Learned About the Civil Rights of the Celiac Community

“When you see something that is not right, not fair, not just, you have to speak up. You have to say something; you have to do something!”- Congressman John Lewis (1940-2020), the "Conscience of the Congress" Overview In advance of the 30th Anniversary celebration of the Americans with Disabilities Act ("ADA") on July 26, 2020, …

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Celebrating the 1 Year Anniversary of Marilyn Geller’s Historic Testimony to the House Appropriations Committee

On April 9, 2019, Marilyn Geller, CEO, Celiac Disease Foundation (CDF), testified on the incidence, prevalence and treatment burden of Celiac Disease to the U.S. House of Representatives Committee on Appropriations, Subcommittee on Labor, Health and Human Services, Education, and Related Agencies. In riveting testimony, Geller described how Celiac Disease is a serious auto-immune disease that afflicts 3 million Americans, including her son, Henry.

Building Community and Fostering Inclusion in the Classroom

Jax recently had the chance to read a book to his 1st grade class about Celiac Disease. He chose to read the book “Gluten Makes My Tummy Roar!” written by Melinda Martell (@raising_jax_the_celiac) who Leslie Bari (@glutenfreefinds_pa) had connected with on Instagram. Ironically, Melinda also has a son named Jax who has Celiac Disease, and …

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Congressional Briefing – Securing Significant Federal Funding for Celiac Disease Research

Thank you Congressman Dwight Evans (D, PA-3, Philadelphia) and Congressman John Joyce, M.D. (R, PA-13, Altoona) for hosting the Congressional Briefing - "Securing Significant Federal Funding for Celiac Disease Research". After some introductory remarks from Congressmen Evans and Joyce, Jon and Leslie Bari began with presenting the patient perspective, reviewed the historical underfunding of Celiac …

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Affinity Groups for Students with Food Allergies and Intolerances Can Help Foster Inclusion & Community

Parents and students know that school is not just about what happens in the classroom. To that end, it is worth considering that school communities might be well served by offering affinity groups for students with food allergies and intolerances (including Celiac Disease), as well as for their parents. What is an Affinity Group?An "affinity …

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Food Insecurity in the Context of Celiac Disease

While food insecurity has often been associated with socio-economic and geo-political issues, food allergies and intolerances such as Celiac Disease arguably fall under the USDA’s definition of food insecurity, “Food insecurity is the limited or uncertain availability of nutritionally adequate and safe foods or limited or uncertain ability to acquire acceptable foods in socially acceptable ways.” …

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National Celiac Disease Awareness Day Presents a Call to Action

September 13th is National Celiac Disease Awareness Day in honor Dr. Samuel Gee (1839-1911) who first identified a link between Celiac Disease and diet! Today should also be a rallying cry for the 3 million Americans with Celiac Disease and their loved ones to rise up and demand that the status quo dating back to …

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The Gold Standard of School Food Service for Food Allergies and Intolerances including Celiac Disease

As kids head back to school and start eating in their school cafeterias again, parents of students with food allergies and intolerances want to keep their kids safe, well nourished and included in all of the social aspects involving food at school. To that end, it is very instructive to watch this Food Safety video …

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